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Katidids77

Registered: 12/15/10
Posts: 5
Reply with quote  #1 

Anyone else suffer from Generalized Anxiety Disorder along with CVS? I find that a lot of my anxious tendencies trigger episodes such as going out to dinner, holidays, events, parties, stressful times such as exams, and vacations. Actually, i've had 2 major CVS hospitalizations over Christmas. Does anyone else seem to have worse symptoms and episodes during these times? I can't even go out to dinner any more without throwing up on the way home. My episodes are never random. They most certainly always have to do with the time of year or certain exciting/stressful events. Right now, i'm planning a wedding, working full time, in school part time and trying to have a social life - needless to say - i'm sick constantly. I take abortive meds immediately when I have an onset so it never lasts more than a few hours, but this is getting ridiculous!  Do you think it's only a coincidence I have an anxiety disorder or does CVS and GAD have something in common?


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A small body of determined spirits fired by an unquenchable faith in their mission can alter the course of history.
wendyb

Registered: 08/07/10
Posts: 50
Reply with quote  #2 
Anxiety absolutely affects me in a negative way. I take desipramine every night to help control nausea and it has a benefit of also helping with anxiety. When I feel an attack coming on I immediately take zofran and ativan (anti-anxiety drug) and so far I have not vomited since July.
I think it's pretty normal to have a lot of anxiety with this illness because it hits out of nowhere and you feel a complete lack of control.
Just having abort meds in case I get an attack has actually helped me overall because I think I am less anxious because I know there is a way out if I feel an attack coming on. I think it's very similar to panic attacks, where just the thought of having a panic attack can wig you out so much it triggers a panic attack.
You might try finding a really good hypnotherapist to help you with strategies for dealing with anxiety, deep relaxation, visualization techniques, etc. It has really helped me a lot.
Good luck! And good luck with the wedding.

mahler1987

Registered: 04/16/05
Posts: 3,033
Reply with quote  #3 
Holidays, birthdays, vacations,..... etc tends to increase the chances of having an episode for many people.  I have to wonder if the anxiety is caused by the CVS, the fear of going someplace and puking.  I know that for me positive or negative stressors are a key factor in my episodes.
 
I was told I had an anxiety problem, turns out its a direct result of having this condition.  progressive relaxation, visualizations deep breathing help me through most of it.
 
Pattie

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I may have CVS but CVS is not me.
Katidids77

Registered: 12/15/10
Posts: 5
Reply with quote  #4 
That's interesting. I never thought of it that way. CVS actually causing the anxiety. But, it sure does!! I was diagnosed with GAD before CVS, but i'm pretty sure it has only gotten worse since the vomiting began. I am always cancelling plans and not going out places for fear that i'll end up in the bathroom all night! I am going to see a CVS specialist that is about 45 minutes away from me. I just got their name and i'll be calling Monday for an appointment. Abortive meds can only do so much. And, i've started taking them everyday. I take Amitriptyline and the side effects make me like a zombie. I'm so tired all the time....not too mention they make me so thirsty I can drink a river!! I'd rather nip this thing in the bud before it starts rather than after!!!

Thanks for the well wishes with the wedding! I told my fiance this past week that I don't even want to have wedding. I'll just end up throwing up all the way down the aisle. So, i'm starting to thing a spontaneous elope might be an order to avoid a CVS episode.

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A small body of determined spirits fired by an unquenchable faith in their mission can alter the course of history.
KelliJo

Registered: 10/01/10
Posts: 44
Reply with quote  #5 
I take nortriptyline.  I've noticed less intense side-effects than amtriptyline.  Maybe that's an option for you? 


Katidids77

Registered: 12/15/10
Posts: 5
Reply with quote  #6 

I'll check it out! Thank you!


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A small body of determined spirits fired by an unquenchable faith in their mission can alter the course of history.
firecop901

Registered: 12/19/10
Posts: 6
Reply with quote  #7 

I just found out about CVS and that it is probably responsible for the 15 admissions to the hospital that I have had since my first episode in Oct. 2008. I have been reading some of the different things that have been posted. I have researched CVS through this sight after a doctor said that I might be suffering from CVS. All 15 episodes that I have had have all been the same. I know when it is  coming, it takes anywhere from 2-4 hours for it to completely hit me once I feel it coming on, it has always gone full blown between 10pm-2am, I have all the symptoms that has been written about CVS with one exception my episodes have always started with headaches, then I start having severe bouts of diahrea, then the vomiting, then all at the same time, then comes 911 and the ER trip. Does anyone else suffer from diahrea? Is this a normal symptom? 


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Darrell W. Hall
mahler1987

Registered: 04/16/05
Posts: 3,033
Reply with quote  #8 
Amitriptyline is famous for that zombie/hangover feeling in the morning, for me it usually takes a week or two for it to start subsiding.  I get this same reaction with any increase, as I did when I first started it.  If you haven't been on the amitriptyline for very long I would try and wait it out, while some have had good luck with nortriptyline, amitriptyline is still the gold standard.  Amitriptyline is a preventative, not an abort med so it needs to be taken daily.
 
Diarrhea is definitely a symptom for many.
 
Pattie

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I may have CVS but CVS is not me.
Lezlid86

Registered: 09/01/10
Posts: 65
Reply with quote  #9 
I've been on the amitriptyline now. started at * upped by * mgs a week until i get to *-- currently at ** mgs. I am feeling better I think. I don't wake up with what I like to call "rock gut" (when it feels like there's rocks rumbling around in an empty nauseous stomach) this was a daily thing for me along with empty gassy belches AS SOON as i wake up. My stomach pain has subsided  A LOT I can now drink coffee daily. i love the stuff &  I used to have excruciating pain after just a cup and the pain would last all day.  

I do notice that on the days that I take the increase dosage i'm exhausted within an hour of taking it. But its bedtime anyway

My anxiety is a HUGE trigger for me. I think its a catch 22 with cvs and anxiety. It's hard to be a ticking time bomb-of-a person and NOT be riddled with anxiety. Finding some kind of hobby to put that nervous energy into has helped me for sure! painting, sewing, baking, gaming (black ops lately) coloring, just something to escape and focus. 

Lezlid86

Registered: 09/01/10
Posts: 65
Reply with quote  #10 
and katy I have also been diagnosed with GAD hospitalized in a behavioral ward for it 3 times.. well it and my "psychosomatic symptoms" that I knew was a crap diagnosis all along. 
Ehrithane

Registered: 09/23/09
Posts: 31
Reply with quote  #11 
Kat, my entire life I was one of those people that never got bothered by a thing.  I had a pretty rough childhood, and the way I saw it, it gave me thick skin.  I never got anxious about anything.  I actually enjoyed confrontation if it was necessary and very much stood up for myself in any situation. ( I worked at an inbound insurance call center, and had absolutely no problem getting stern with a customer and practically treating them like a child if they tried to scream at me because they were in the wrong.)

Since I've been sick, it has been a complete 180.  Even if I am wronged in some way, I will try to let it pass because getting worked up about it will result in terrible consequences.  My mom started yelling at me the other day (long story...) when I was visiting and when I tried to defend myself, it only resulted in everyone else having a normal day and me being sick the rest of it.

On top of that, getting too excited about something positive can have the same effects.  One of my worst days to date was the day my insurance company called and told me that my appeal got approved and I would have insurance, that news put me in the hospital, heh.  Last Xmas I ended up sick that day and in the hospital the next.  I was in my best friends wedding in September, I was heavily medicated the ENTIRE time and made it through the wedding ok, but by the reception I was barely even around because I still ended up extremely sick...

However, the facts are these.  I had a lot of fun at the wedding up until I got sick.  Had I opted not to go, my memory of that day would be the same as 99% of the days since I got sick, likely something else would have triggered it before the day was over, and I made it to support my best friend and his new wife, which I know they were happy about, and now I also have pictures of me somewhere looking badass in a tux (since I've lost 125lbs )

Sometimes I have to turn down things that I really want to do. My brother is trying to start a production company and the one project  they've worked on, I wasn't able to make it because I knew the hours of driving coupled with the hours of labor and bright lights would have had me in the bathroom more than helping, then that would have pulled others away from the production that would have been constantly checking on me...

My brother and his fiance are the only 2 people that have a proper understanding, and his fiance is the only person that is able to make the proper decision when even I won't that I need to go in to the hospital(another long story, but she's the only person that has had to live in close proximity of me when its been at its worst, and has had to sacrifice a LOT to aid me.) So when I'm with them, I generally am able to keep calm even during exciting things.  They'll both do things to help calm me down if they see something is starting to happen, and if I stay the night with them, they take steps to make sure the morning is as easy a transition as possible (mornings are always my worst time) there is about a 99.9% chance I'll be sick when I wake up currently, and if I can't obtain certain conditions, it won't stop.

Like I said, before CVS, anxiety was NEVER an issue for me.  Now, it is a HUGE factor in my life, it's tough to learn how to deal with it properly.  I can vividly remember the first time I got worked up over nothing, it was terrifying.  I had never felt that way.  I'm slowly learning how to deal with it, and being put on a slew of medications that are supposed to calm me down, and help with depression and all that.  Depression is a whole other aspect, but again, just knowing what we deal with having CVS, how could one not be depressed? 

It could very much be a coincidence that you have both conditions, but it also could be as was stated above, we're ticking time bombs.  For us, it's "when I puke again" not "if" and that does plenty to work nerves.  I know that CVS is what causes me to have anxiety problems, before I had to worry about getting sick all the time, I never had to worry about being anxious.  I even got over my fear of roller coasters at 22 or so?  Up until I got this condition it wasn't a problem at all, now it's something I have to think about all the time.


**sorry if I got repetitive, I'm not feeling well right now at all and am trying to keep my mind off of it, so I may have said the same thing a few times over **



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I hate each day more than the day before. I hate today like it was already tomorrow...

Harboring my dark passenger since 06/2009
Smokeater42

Registered: 04/06/04
Posts: 1,501
Reply with quote  #12 
Good stress & Bad stress are common triggers with CVS,another one that is common is Heat & Humidity,These triggers have been common to CVSers, My wife doesn't tell me where we are going anymore just tells me to get into the car and now i know better than question,Thinking about when the next attack with hit is pretty common too,i do that alot,i have an attack 1 or 2 times aweek and since Feb of this year my triggers are thourghly tested as i have been ave. an attack everyother day, just been a bad year for me,hoping next year will be better
The main thing to remember is your not alone,alot of us are pulling for you and i know all to well the need to vent on the CVSA board

Merry Christmas all and a puke free New Year
Heave hooooo
Smoke


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When you have CVS life is one puke after another
mahler1987

Registered: 04/16/05
Posts: 3,033
Reply with quote  #13 
Just a friendly reminder that we are not allowed to use specific dosages of drugs due to liability issues for CVSA.  Thank you in advance for understanding.

Pattie

__________________
I may have CVS but CVS is not me.
firecop901

Registered: 12/19/10
Posts: 6
Reply with quote  #14 
I went to my Primary care Doctor yesterday and gave him a sheet explaing CVS, etc. He seemed to know about it , but more or less blew me off when I said that it might help explain all my trips to the ER over the past two years. It kinda perturbed me that he treated me that way. I haven't tryed taking Ativan yet because I also have COPD and according to the info sheet it can affect it. I'm scared I will wake up dead!! So untill I can get into see my breathing doctor Iam not going to try it. How do you get people to understand what CVS is and how it affects you and everydaay life? I am really trying to deal with this but sitting around wondering when my next attack is going to be and knowing what is going to happen when it does gets frusrtating. I know this is probably a dumb question, but are there any secrets on how to better deal with CVS? Does anyone know of a way or something to tell my 8 year old as to why Daddy ends up in the hospital every 3-4 months? He has watched me go through each of my episodes and how violent the vomiting has been each time. He is afraaid I will go to the hospital and not come back home because his mother died in the hospial from accident injuries in 2006, so he associates the hospital with dying.
  Thanks for listening and ALL comments or suggestions are welcome.

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Darrell W. Hall
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